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New Innovative Patient Information Tools at Regional Cancer Care

May 24, 2005 Click to listen to this page using ReadPlease

 

With some grant funding from the Northern Cancer Research Foundation (NCRF) and a new partnership, the Education program at Regional Cancer Care at the Thunder Bay Regional Health Sciences Centre (TBRHSC) has developed three new and innovative ways to deliver information to patients and their families.

 

cancer care education 01 The newest program, the Oncology Interactive Education Series (OIES) is a state of the art computer based learning program for patients, families, and Oncology professionals. A ‘made-in-Canada’ success, the purchase of this award winning cancer education software has been made possible with funding from the NCRF. There are 24 cancer site-specific titles that include a general level for patients and families searching for information in an easy to read and visually understandable format, and a clinical level for Oncology professionals with an understanding of cancer as it relates to diagnosis and treatment. “The cancer program is committed to researching and exploring innovative and user-friendly methods of delivering treatment, care, and information for patients and families,” stated Michael Power, Vice President of Regional Cancer Services and Diagnostic Imaging. “The implementation of these new information and education tools provides us with the means to further serve our patients and raise our bar of standards and excellence.”
   
cancer care education 02 Developed by Jack Digital Productions Inc. in collaboration with Princess Margaret Hospital, and hundreds of health care professionals, patients, and family members, the content of the software is designed to address a broad range of learning styles, computer experience, abilities, literacy levels, and language skills. Some of the features include ‘3D’ computer animation, virtual reality graphics, voice-over narration, search and print functions, frequently asked questions, and video clips of patient interviews. “We really thought that this would be a great fit for the cancer program in Northwestern Ontario,” said Alison McMullen, Acting Director of Preventive Oncology and Manager of Education. “This was a part of our ongoing ‘wish list’ for our patients and staff members; to have a comprehensive resource that people could research at their own pace and level of understanding. Our patients and families can be overwhelmed initially, and this program provides them with easily accessible answers to their questions, as do the other tools, and they are all available at any time, whenever they’re ready to absorb the information.”
   
cancer care education 03 The Education program has also developed two additional resources for patient and family information; the ‘Patient Journey’ visual, in DVD and VHS formats, and the ‘New Patient Package’, a binder of information for new cancer patients, designed to provide information on treatment, community supports, and wayfinding around the cancer program at TBRHSC and in the region. “When I was diagnosed with cancer, it was a very emotional and difficult time,” said Catherine Forbes-Dyck, one of the survivors interviewed for the ‘Patient Journey’ visual resource. “My family and I had many questions about expectations, treatment, and our next steps, and the information that we were given was delivered with such compassion and detail, that the experience was much less terrifying than I ever thought it would be.”
   
cancer care education 04 The ‘Patient Journey’ provides information on moving through the cancer centre and the Health Sciences Centre, as well as information for regional patients. It details walkthroughs of treatment with Radiation Therapy, Chemotherapy, and has a section with interviews with cancer survivors, who describe their experiences and lifestyle changes. This was also made possible by a grant from the NCRF. “We work very closely with the Education and Preventive Oncology programs in the cancer program in Northwestern Ontario,” said Glenn Craig, President and CEO of the NCRF. “It is one of our highest priorities; to provide the means for education, awareness, and information for the regional community, so when we have the opportunity to collaborate and help fund projects such as the OIES and the ‘Patient Journey’ visual resource, we help as much as we can.”

 

The ‘New Patient Package’ is the other most recently developed information piece for new cancer patients and their families. It highlights information on treatments and what to expect, supportive care at the centre and in the community, resources for information, a ‘health record’ journal, and various tools that new patients and their families need for their first visits to the program. The new partner with this information tool is the Thunder Bay Safeway Pharmacies, with three sites around Thunder Bay, providing comprehensive information, service and access to the community. “We were very interested when we were first approached by the cancer program to partner on this particular information tool,” said Angela Wierzbicki, Regional Pharmacy Manager of Canada Safeway Ltd. “When I went on a tour of the cancer centre, and saw the scope of service and the necessity for information and awareness, I thought this would be a perfect fit for the Safeway pharmacies in Thunder Bay.”

 

Click here for addtional information regarding the Oncology Interactive Education Series.

 

 

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